Saying true things
August 14, 2024
My mom died in April. It was unexpected in a complicated way.
Dad has Alzheimer's. He's in the early stages, and we all mostly pretend it's not happening, at least with him. But he can't drive anymore and I manage his life for him. He lives with us. I don't ever know how to say that, because they both lived with us. I said, "Mom and Dad live with us," for years, but now...anyway. He's there, right on the other side of that door in the living room.
Today he found a binder of blog entries from this silly thing. I guess Mom printed them out and kept them. There are multiple binders. Gracious, I did go on, didn't I?
He brought over the binder and sat on the couch, leafing through it slowly.
"Reading Dawn's writing makes it feel like she's talking to me," he said, tears leaking into a slick under his eyes.
I was sitting in a chair across the room, working, and I looked up at him. I didn't know what to say. That's not Mom's voice, that's me, I thought.
But it doesn't matter and why on earth would I take away this comfort?
Yet how can he confuse those posts for his wife's words?
He keeps telling me a story from a day before she died. It's touching and heartbreaking and sweet. And not one bit of it happened. But it's what he remembers, so I listen to it, over and over and over. In my mind, overlaid like a double-exposed negative, are my memories of that last day.
Bending over her hospital bed in the living room to swab her mouth with lemon glycerin swabs, apologizing for the taste, but her tongue felt like leather and I didn't know what else to do. She had stopped waking up, and I truly didn't know how else to care for her dry mouth and faltering body. Squirting the tiniest measure of opioid into her mouth, against the soft wall of her cheek.
Waking in the dark because her noisy breath stopped, crawling off the couch where I'd been sleeping like a wounded animal. Stumbling over to stand, hunched over her empty body, whispering, "Mama? Mama? Oh, Mama."
A dear friend told me that when her mom died, she kept discovering she couldn't breathe. Like she'd been punched. That's it exactly. But it's been four months, and some of the worst of the fog is starting to clear.
Yet how do you grieve when the fog never thins? How do you move on when you don't remember the work of grieving yesterday? Dad is so lost and sad. All the advice for interacting with people with dementia recommends that you don't correct them. Treat it like an endless improv exercise, and just go with it. There's no reason to upset them.
So Dad tells me stories about last moments together that never happened. He reads my words and says Mom is speaking to him. I sit, mute, unable to find a single true thing to say and lost in the unanswerable needs of another terminal parent.